Funding for this research was provided by:
Text and Data Mining valid from 2020-01-06
Received: 16 September 2019
Accepted: 9 December 2019
First Online: 6 January 2020
Ethics approval and consent to participate
: All study protocols were Institutional Review Board-approved, and all participants provided written informed consent. The ethical conduct of the qualitative patient interview study was approved by Ethical & Independent Review Services (10203-01).
: Not required.
: LM has received grants and consultancy fees from Actelion Pharmaceuticals Ltd., LFB Biotechnologies, CSL Behring and Roche.MV declares that there are no competing interests.KP and LP are employees of Actelion Pharmaceuticals Ltd.DK has received grants from Boehringer Ingelheim, Bristol-Myers Squibb and Corbus Pharmaceuticals; has received consultancy fees from Actelion Pharmaceuticals Ltd., Acceleron Pharma, Arena Pharmaceuticals, Bayer, Boehringer Ingelheim, Bristol-Myers Squibb, CSL Behring, Corbus Pharmaceuticals, Cytori Therapeautics, GlaxoSmithKline, Genentech (Roche), Galápagos NV, Merck & Co., Mitsubishi Tanabe Pharma and UCB; and holds stocks and/or shares in Eicos Sciences, Inc.