Funding for this research was provided by:
Inova Health System
Received: 7 December 2018
Accepted: 8 May 2019
First Online: 16 May 2019
Ethics approval and consent to participate
: The “Childhood Longitudinal Health Outcomes” study was approved by the Inova Institutional Review Board (#15-1804), with full written informed consent obtained for all participants.
: Written informed consent for publication was obtained during study enrollment. Re-consent for publication was obtained verbally following the genetic diagnosis.
: The authors declare that they have no competing interests.