Guilarte, Mar http://orcid.org/0000-0001-7242-9584
Sala-Cunill, Anna
Baeza, María Luisa
Cabañas, Rosario
Hernández, María Dolores
Ibañez, Ethel
de Larramendi, Carlos Hernando
Lleonart, Ramon
Lobera, Teófilo
Marqués, Luis
de San Pedro, Blanca Sáenz
Botha, Jaco
Andresen, Irmgard
Caballero, Teresa
,
Clinical trials referenced in this document:
Documents that mention this clinical trial
Real-world outcomes in hereditary angioedema: first experience from the Icatibant Outcome Survey in the United Kingdom
https://doi.org/10.1186/s13223-018-0253-x
Hereditary angioedema due to C1 inhibitor deficiency: real-world experience from the Icatibant Outcome Survey in Spain
https://doi.org/10.1186/s13223-021-00641-3
Funding for this research was provided by:
Takeda Pharmaceuticals
Article History
Received: 1 June 2021
Accepted: 13 December 2021
First Online: 29 December 2021
Declarations
:
: IOS is conducted in accordance with the Declaration of Helsinki and the International Conference on Harmonisation Good Clinical Practice Guidelines, and approval was granted by health authorities and local ethics committees. Written informed consent was obtained from all enrolled patients.
: Not applicable.
: MG has received speaker/consulting fees from CSL Behring, Novartis, and Takeda; received funding for travel/meeting attendance from CSL Behring and Takeda; and participated in clinical trials/registries for BioCryst, CSL Behring, Pharming, and Takeda. AS-C has received speaker/consulting fees from CSL Behring, Novartis, Sanofi, and Takeda; received funding for travel/meeting attendance from CSL Behring and Takeda; and participated in clinical trials/registries for BioCryst, CSL Behring, Pharming, and Takeda. MLB has received speaker/consultancy fees from CSL Behring, Novartis, and Takeda; has received funding to attend conferences/educational events from CSL Behring, LETI, Novartis, and Takeda; has participated as an investigator in clinical trials/registries for CSL Behring, BioCryst, Novartis, and Takeda; and is a researcher in the IiSGM research program. RC has received funding for travel/meeting attendance from CSL Behring, Novartis, and Takeda and participated in clinical trials/registries for BioCryst, CSL Behring, Pharming, and Takeda. MDH has received consulting/speaker fees and funding for meeting attendance from CSL Behring, Menarini, Novartis, and Takeda and participated in clinical trials/registries for ALK, Allergy Therapeutics, Bial, CSL Behring, GlaxoSmithKline, HAL Allergy Group, Stallergenes, Takeda, and Teva. EI has received speaker fees and funding for travel/meeting attendance from Takeda and has participated in clinical trials/registries for ALK, Bial, CSL Behring, GlaxoSmithKline, HAL Allergy Group, Novartis, Stallergenes, and Takeda. CHdL has received speaker fees and funding for travel/meeting attendance from Novartis and Takeda and participated in clinical trials/registries for Takeda. RL has received speaker/consulting fees and funding for travel/meeting attendance from CSL Behring and Takeda and participated in clinical trials/registries for BioCryst. TL has received speaker fees from ALK-Abelló, Meda, Novartis, and Takeda; received consulting fees from Takeda; received funding for travel/meeting attendance from ALK-Abelló, Dyater, LETI, Menarini, and Novartis; and participated in clinical trials/registries for Novartis and Takeda. LM has received speaker fees from Chiesi, Meda, Novartis, and Takeda; consulting fees from Takeda; and funding for travel/meeting attendance from Menarini, Novartis, and Takeda. BSdSP has received speaker fees and funding for travel/meeting attendance from Novartis and Takeda. JB and IA are full-time employees of Takeda and hold stock/stock options in Takeda. TC is a member of advisory boards for BioCryst, CSL Behring, Novartis, Octapharma, Pharming, and Takeda; is a member of speaker bureaus for CSL Behring, Novartis, and Takeda; has received grants or honoraria from BioCryst, CSL Behring, Novartis, and Takeda; has received funding to attend conferences/educational events from CSL Behring, Novartis, and Takeda; is/has been a clinical trial/registry investigator for BioCryst, CSL Behring, Novartis, Pharming, and Takeda; and is a researcher from the IdiPAZ program for promoting research activities.