Funding for this research was provided by:
Stichting ALS Nederland (AV20180015)
Received: 10 November 2021
Accepted: 9 March 2022
First Online: 17 March 2022
: This study was approved by the institutional review board of the University Medical Center Utrecht. All methods were carried out in accordance with relevant guidelines and regulations. Participation was voluntary and written informed consent was obtained from all participants prior to participation in an interview. If participants were under the age of 16, informed consent was obtained from both parents and children.
: Not applicable.
: The authors declare that they have no competing interests.