Funding for this research was provided by:
Research for Patient Benefit Programme (PB-PG-1010-2353)
Received: 24 May 2019
Accepted: 7 April 2020
First Online: 12 May 2020
Ethics approval and consent to participate
: A favourable opinion was obtained in June 2012, by South West 2 Local Research Ethics Committee.At the end of November 2012, LREC approved a substantial amendment. This amendment allowed patients to be informed about the study before their blood results came back. In December 2012, information regarding the new recruiting pathway was sent to GPs. This asked GPs to provide patients with an informational leaflet at the initial contact and then again once a normal blood result was obtained. It was hoped this would improve recruitment.
: The manuscript does not contain any individual person’s data in any form.
: Professor Crawley is a non-paid medical advisor for the Sussex and Kent ME/CFS Society.