Funding for this research was provided by:
Canadian Institutes of Health Research (397466)
SickKids Garron Family Cancer Centre Conference Grant
Received: 13 September 2019
Accepted: 5 January 2020
First Online: 28 February 2020
Ethics approval and consent to participate
: Ethics approval was obtained from The Hospital for Sick Children Research Ethics Board (Reference #1000054246). The Retinoblastoma Research Registry has a separate ethics board approval (Reference #1000054738). Consent was obtained from participants at the beginning of each annual general meeting. In cases where a questionnaire was provided outside of the meeting, consent was obtained when providing the questionnaire.
: The authors declare that they have no competing interests.