Funding for this research was provided by:
Received: 16 June 2021
Accepted: 6 January 2022
First Online: 24 January 2022
: Ethical approval for this study was obtained prior to initiating data collection.
: All participants provided written informed consent prior to initiating the interview.
: This study was funded by Sarepta Therapeutics. IFA and KLG are employees of Sarepta. SMS is an employee of Broadstreet HEOR, which received funds from Sarepta to conduct this study. DF, PN, and DCM received consulting fees related to this work. DF has a proprietary interest in Health Utilities Incorporated, Dundas, Ontario, Canada. HUInc. distributes copyrighted Health Utilities Index (HUI) materials and provides methodological advice on the use of HUI.