Text and Data Mining valid from 2019-10-26
Received: 29 March 2019
Accepted: 26 September 2019
First Online: 26 October 2019
Ethics approval and consent to participate
: The questionnaire was accessible via the websites of both SOS fibromyalgia and AFLAR patients’ organizations involved and via social networks (Facebook). A letter was sent to all the contacts of the patients’ organizations sponsoring the study. Patients received written information about the study and were informed of the epidemiological use of their data. The study was performed in fully anonymous mode compliance with current national regulations in 2014. Data were hosted on a secure plateform (health records hoster approved). By design, this study was not pursuing clinical objectives but patients’ experiences and there was no inclusion by physicians. The construction of the questionnaire was even involving different expertises by patients’ organizations (Fibromyalgie SOS and AFLAR) which are recognized as public interest organizations. As far, a formal ethical committee approval was not required.
: Not applicable (anonymous data).
: We declare that they have no competing interest for Françoise Laroche, Déborah Azoulay, Anne Priscille Trouvin, and Joël Coste. Serge Perrot has been coordinator of a study carried out by Daiichi-Sankyo on fibromyalgia and was a member of advisory boards on fibromyalgia for Pfizer, Pierre-Fabre and Lilly in 2010–2014.